Family support

  • Dravet syndrome is a rare and deeply impacting condition for both the child and his family. That is why, throughout the world, families have gathered around association to provide advice and support.

1/ Family association

Family association

Dravet Syndrome

2/ Family stories

Please find below interviews of families with a Dravet child.

Announcement of the diagnosis

Genetic concerns

Controlling the seizures

The importance of early treatment

Daily Life

Integration at school

Reaction of others

Conclusion family stories

3/ Doctors perspective

Please find below interviews of doctors coping with Dravet children.

Vaccination – Pr Ingrid Scheffer

SUDEP – Dr Peter Camfield

Genetics – Dr Arvid Suls